Our little boy Timmy, now 7 years old, was diagnosed with Nasopharyngeal Rhabdomyosarcoma or RMS in 2008. He was treated in 2008 with Chemotherapy, 6 months of IVAdo, and 5 weeks of conventional EBRT Radiotherapy, both of which he tolerated well.
In August 2010 Timmy relapsed after 18 months of clear scans with a tumor in the original site. This local recurrence pointed us towards Brachytherapy and ablation of the Sinus and nasal cavity as local control 2 months into 6 months of VIT Chemotherapy.
Sadly Timmy relapsed for a second time in mid May 2011. And and we are currently looking for any clinical trials for relapsed RMS with targeted Chemotherapy. And as a means of local control, we are looking for options including Radiotherapy (Proton or Stereotactic/CyberKnife) or Surgery as a multidisciplinary approach to a potential curative solution. From a surgical point of view we are considering radical intervention and are currently looking for cranial/Sinonasal surgeon's to help us find solutions for local control - with or without the radiotherapy option.
We are determined to find an option and can provide MRI/CT images and surgical notes to aid assessment. We are also keen for any groups or individuals to contact us with suggestions or requests for further information. Please feel free to contact us at masonfamily2001@yahoo.co.uk
